❝ It’s a privilege to once again present at the MENA Congress for Rare Diseases, a platform that has inspired me for the past three years. This year, I am excited to introduce the ACE program, which focuses on driving Alignment, Commitment, and Excellence to build inclusive environments for People of Determination. I believe this program can be a game-changer for organizations, as it presents a unique opportunity for executives and decision-makers in the UAE to learn from leading experts and gain practical tools to drive meaningful change. I encourage you to join us and be part of this important conversation on inclusion and belonging ❞

❝ Join me for a transformative experience at the MENA Congress for Rare Diseases! I’m thrilled to present “Nutritional Challenges in Managing Rare Diseases,” where we’ll explore how innovative nutrition strategies can significantly enhance patient care. It is your chance to be part of the conversation that will shape the future of rare disease management. Don’t miss this opportunity. Your insights and engagement are keys to making a real impact! ❞

❝ I am honored to take part in the MENA Congress for Rare Diseases 2025, the largest event for rare diseases in the region. I am grateful to connect with patients and their families to exchange experience and knowledge. As a mother of two children with a rare disease, I am glad to get the opportunity to share my experience in the congress and raise the awareness about mitochondrial disorders. ❞

❝ As a dedicated adoptive mother of a child with a rare disease, I am honored to share my journey at the MENA Congress for Rare Diseases. My speech will focus on the intricate path of diagnosis and the transformative experience of motherhood when raising a child with special needs. I aim to shed light on the emotional and practical challenges faced during this journey, as well as the profound joys that come with it. Through my story, I hope to inspire and empower others navigating similar paths, fostering a deeper understanding and connection within our community. ❞

❝ In Middle East and North African countries (i.e., the MENA region), certain rare diseases are more common than in other areas of the world. Patients with such rare diseases require a high level of suspicion to diagnosis, may present to different subspecialists, and need a multidisciplinary approach. The MENA Congress for Rare Diseases is thus an important congress for practitioners in the MENA region that highlights relevant diseases which are often not well covered in other international conferences. The symposia of the congress and the broad range of specialties represented are impressive. I look forward to participating in and learning from the MENA Congress for Rare Diseases 2025. ❞

❝ Join me at the MENA Summit for Autism and Neurodivergence, an exciting part of the MENA Congress for Rare Diseases 2025! This event is a unique opportunity to contribute to the advancement of our region. I am looking forward to this opportunity to chair a session on discussing various ways to foster understanding of autism from a neuro-affirmative lens, share cutting-edge insights and innovative practices, and advocate for inclusive policies that enhance the lives of autistic individuals and families across the MENA region. As a neurodivergent professional, I am incredibly passionate about cultivating a neuro inclusive culture because inclusion is not a privilege but a right connected to the fundamental human value of belonging. ❞

❝ Hailing from the eastern province of Saudi Arabia, where rare diseases are prevalent, I consider the MENA Congress for Rare Diseases a profoundly enlightening and enriching experience for all individuals contending with these health challenges. The MENA Congress for Rare Diseases serves as a pivotal regional summit concentrating on rare diseases and orphan drugs within the Middle East and North Africa (MENA) region. Its aim is to convene healthcare professionals, researchers, policymakers, and patient advocates to deliberate on advancements, exchange knowledge, and foster collaboration towards bettering the care and treatment of rare diseases. From a personal perspective, I look forward to delving into alpha thalassemia and assimilating the latest updates on treatment and advancements ❞

❝ MENA Congress for Rare Diseases 2025 will provide a unique platform for innovative discoveries and insightful discussions and collaborative networking for rare diseases. Our congress allows exchange of experiences and knowledge between all participants from the region and all over the world ❞

❝ I am eagerly anticipating the opportunity to participate in the MENA Congress for Rare Diseases 2025, where I look forward to engaging with healthcare providers, researchers, advocates, and patients as we work collectively to ensure that no person living with a rare disease is left behind. This congress perfectly aligns with RDI’s commitment to deepening our engagement and support for people living with rare diseases (PLWRD) and their communities across the MENA region. The high quality of the presentations, the diversity of topics covered, and the strong international participation underscore the significance of this congress as a key platform for advancing our shared mission. At Rare Diseases International, our vision is to create a world where people living with rare diseases and their families experience a better quality of life through full recognition and comprehensive support. This congress is a vital step in achieving that vision by bringing together global stakeholders to collaborate, innovate, and advocate for those who are too often overlooked ❞

❝ Having spoken at the conference last year, I consider it a privilege to return. I look forward to sharing what this journey with rare disease has taught me alongside other parents. ❞

❝ My name is Abdulla Lutfi, I am Autistic Savant, black and white Emirati artist. I am honored to be a part of the MENA Congress for Rare Diseases 2025 in partnership with Burjeel Medical City and honored to be speaking at the 1st MENA Summit for Autism and Neurodivergence. I see my autism not as a limitation but as a strength. It has given me a different way of seeing the world, and I realized I could use that to tell stories, not only about myself but about the people and places around me. I am proud to represent the UAE as an autistic savant artist, and I hope my work inspires others to embrace their differences and use their unique talents to share their voices. Every stroke of my pen is a reminder that we all have a special way of seeing and experiencing the world, and that should be celebrated. ❞

❝ The MENA Congress for Rare Diseases is an incredible forum for advancing knowledge and establishing communities amongst clinicians, academic researchers, families, and industry partners. As an academic scientist, I am grateful for this conference for providing a window into the patient experience and clinical practice to inform ongoing therapeutic development. ❞

❝ As a parent of two wonderful children with neurodivergent traits, I have had the privilege of learning and growing through the unique experiences and challenges that come with neurodiversity. Embracing a strengths-based approach has been essential in supporting and nurturing their individual strengths and talents. I am truly honored to have been given the opportunity to speak at the MENA Congress for Rare Diseases 2025. It is my aspiration to impart my knowledge and insights to the audience, drawing from my own experiences. Furthermore, I am immensely grateful for the inclusive approach taken by the MENA Congress for Rare Diseases 2025, a unique event in the region, in recognizing the importance of neurodiversity. The inclusion of the MENA Summit for Autism and Neurodivergence as part of the MENA Congress for Rare Diseases 2025 is a significant step forward in creating a space where individuals and families affected by neurodivergent conditions can come together, share knowledge and foster understanding and acceptance within the community. ❞

❝ Improving care for rare disease patients requires global collaboration and continuous inspiration from various parts of the world. MENA Congress for Rare Diseases will be a wonderful opportunity to share experience in the field of Duchenne muscular dystrophy and to gain knowledge and learn about care approaches in different regions than I am used to working in. ❞

❝ Participating in the MENA Congress for Rare Diseases 2024 was a truly inspiring experience, and I am deeply grateful to the organizers for creating such a meaningful event. It was an honor to share insights on stress management for parents of children with special needs and to engage with a community so dedicated to improving lives. The congress provided a unique platform for learning, collaboration, and the exchange of ideas, fostering a sense of unity and purpose among professionals, researchers, and advocates alike. I look forward to continuing this important work and am excited to share more insights at the coming congress, MENA Congress for Rare Diseases 2025. For anyone passionate about making a difference in the field of rare diseases, attending this congress is an invaluable opportunity to connect, contribute, and be part of a movement that truly matters. ❞

❝ Participating in the annual MENA Congress of Rare Diseases provides an invaluable experience to engage with leading experts and stakeholders to share insights and discuss breakthroughs in this field. The inclusion of a dedicated genetic counseling conference is particularly vital as it addresses the growing need for specialized support in understanding and managing the genetic aspects of rare diseases, ultimately improving outcomes and quality of life in the MENA region ❞

❝ I am glad to participate in the MENA Congress for Rare Diseases 2025. This congress serves as a platform to present the latest advancements, exchange cutting-edge scientific knowledge, and discuss the newest clinical applications aimed at improving the care of patients with rare diseases. ❞

❝ I am excited to be a part of the MENA Congress for Rare Diseases 2025. This congress is an excellent platform to foster collaboration and knowledge exchange across researchers, clinicians, and individuals with rare diseases and their families to advance therapies for individuals with rare diseases. ❞

❝ I look forward to participating in the MENA Congress for Rare Diseases 2025. This is an excellent opportunity for stakeholders across the translational spectrum of targeted therapy development to share their expertise and to learn from professionals in related fields. ❞

❝ This conference is gaining strength every year. The amount of information, support, and new knowledge that are offered in this conference are immense. I had the privilege to speak and to present. I certainly look forward to learning at next year's congress ❞

❝ It is my honor to participate in this esteemed gathering focused on rare diseases in the MENA region. The noble aim of this conference—to enhance the health and quality of life for individuals affected by rare diseases, particularly in our region—resonates deeply with my professional commitments. Conferences of this caliber are invaluable for fostering knowledge exchange and collaboration and play a crucial role in advancing our collective understanding and improving patient care. As a nutrition specialist and healthcare professional, I am dedicated to improving the lives of those grappling with metabolic disorders, including weight-related issues, alongside the unique challenges posed by rare diseases. This gathering provides a crucial platform for sharing expertise in dietary interventions and learning about the latest advancements in rare disease management. I extend my sincere gratitude to all involved in organizing and contributing to this event. Your efforts are vital in advancing our understanding and improving care for those with rare diseases in our MENA region. Together, we can make significant strides in enhancing the quality of life for these individuals and their families. ❞

❝ Being part of this conference is a privilege and an opportunity to contribute to a cause that profoundly impacts lives. By engaging with experts, sharing insights, and collaborating on solutions. We, together, can drive progress, illuminate the path forward, and bring hope to those affected by rare diseases and their families. Our shared knowledge, passion, ideas, and innovation will drive meaningful change for a better now and tomorrow. ❞