❝ I am honored to be part of the the MENA Congress for Rare Diseases. Knowledge sharing through such dedicated platforms is essential in rare diseases, to realize state of the art advances in diagnosis and management through evolving evidence and expert opinion. The journey from bench, to bedside, to the community is fueled by collaboration between different stakeholders involved in the care and research of rare diseases. ❞

❝ I am honored to be invited to serve on the scientific committee for the upcoming MENA Congress for Rare Diseases. As a geneticist and member of Saudi Society of Medical Genetics I have dedicated my career to advancing research and understanding of rare diseases, particularly in the MENA region. I am passionate about bringing together experts from across the region to share knowledge, foster collaboration, and advocate for the needs of patients with rare diseases. I believe that the MENA Congress for Rare Diseases will play a crucial role in advancing the diagnosis, treatment, and care for patients with rare diseases in our region. I am committed to working with the scientific committee to make this event a success and to further the cause of rare disease research and advocacy in the MENA region. ❞

❝ The Angelman Syndrome Foundation is delighted to take part in the forthcoming MENA Congress for Rare Diseases, a pivotal event that holds immense significance in the realm of rare diseases. This gathering brings together a diverse array of stakeholders, including healthcare professionals, researchers, advocates, patients, and policymakers, all dedicated to advancing the understanding and treatment of rare diseases in the MENA region. We are honored to take part in this transformative journey, fostering connections, sparking innovation, and driving progress in the field of rare diseases. ❞

❝ I am honoured to be a part of the MENA Congress for Rare Diseases. This event brings together experts, researchers, and advocates dedicated to advancing the understanding and treatment of rare diseases. I look forward to sharing insights on neurodevelopmental and behavioral aspects, contributing to the collective effort to improve the lives of individuals and families affected by these conditions.

Look forward to meeting you all and celebrating each one’s uniqueness!

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❝ It is of my distinctive pleasure to be a part of the outstanding meeting of Rare Diseases in the MENA region. One of the Charitable aims of this meeting is to promote health and quality of life for patients suffering of Rare Diseases especially in our MENA region. The main goal of this unique meeting is bringing together best professionals to develop a comprehensive educational impact for physicians, healthcare providers and families, spread awareness that will facilitate diagnosis and management, propagate science, share experiences, collaborate and discuss the recent advances for different themes concerning Rare Diseases. ❞

❝ The MENA Congress for Rare Diseases aims to advance knowledge, foster collaborations, and champion the cause of those affected by rare diseases in the Middle East and North Africa region.

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❝ MENA Congress for Rare Diseases is a big campaign and a great opportunity for all physicians to know about the rare diseases and the most updated knowledge in the field, which will increase the awareness among them and early referral for specialized physicians ❞

❝ Taking care of patients with rare diseases present an immense challenge to the healthcare providers; the key to successfully managing these thought-provoking patients is a multi-disciplinary team approach.

From my previous attendance of the rare diseases annual meetings, this provides an outstanding and an excellent platform to learn from experts in different several medical arenas and an ample opportunity to network with experts in the field that will help us managing these patients.

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❝ In 2023, Special Olympics UAE had the opportunity to conduct Unified Healthcare training at the MENA Congress for Rare Diseases. This occasion gave us the privilege to train a total 40 medical staff from different healthcare providers across the UAE. I invite all patient interfacing staff to attend this training, as it is extremely important to deliver compassionate healthcare for people of determination when going to doctor appointments. ❞

❝ I am thrilled to participate as a Palestinian certified music therapist and parents' counselor in the MENA Congress for Rare Diseases. My active contributions underscore the transformative influence of music therapy on patients with rare diseases. Additionally, my work involves guiding parents of children facing these challenges, ensuring a focused approach that caters to their distinct needs and cultivates a nurturing support system. I eagerly anticipate engaging with parents, attentively addressing their needs, and participating in insightful discussions with fellow professionals on effective strategies for working with rare diseases. ❞

❝ The MENA Congress for Rare Diseases is the largest genetics, metabolic, and genomics meeting in the region. It provides a wide variety of symposia, workshops, and lectures, discussing the latest ground-breaking discoveries and cutting-edge science in all areas of clinical and metabolic genetics. It also offers new collaboration, opportunities, and networking events among leaders in patient care, research, and other professionals from the region and internationally. ❞

❝ When I attended the MENA Congress for Rare Diseases last year, I appreciated the opportunity to listen to many industry professionals. I also saw the need for parents to share their experiences on this platform. This year, I am privileged to raise awareness of rare diseases and how they might relate to autism - from my own case study - my son. Never before have I experienced such an opportunity to share the stage with another parent and specialist pediatric professionals. I hope that medical professionals, advocates and families take this opportunity to come to ask their questions at this special session. ❞

❝ The MENA Congress for Rare Diseases is a big event which provides a great opportunity for healthcare professionals, patients, and their families to raise awareness, and to share the most updated knowledge about rare diseases. This meeting is an important platform to provide support to individuals and parents with rare genetic diseases and to share experience, learn, and network with experts in the field from all over the world. ❞

❝ As a parent of a child with Angelman syndrome, I understand the struggles and challenges that come with navigating the journey of finding treatments and obtaining a proper diagnosis. It took a significant amount of time for us to adjust to this reality. However, through perseverance and the support of organizations like yours, we have been able to find hope and valuable resources. Attending the MENA Congress for Rare Diseases will be instrumental in our journey. It will provide us with the opportunity to gain knowledge about the latest advancements in the field, connect with other families facing similar challenges, and find support within a community that understands our unique experiences. The congress will truly become a beacon of hope for us, and I am excited to share this enthusiasm with others. By sharing my story and experiences at the congress, I hope to inspire and encourage delegates to attend. Together, we can create a stronger network of support, raise awareness, and advocate for improved treatments and resources for rare diseases. ❞

❝ The MENA Congress for Rare Diseases stands as a crucial and highly consequential event within the sphere of rare diseases. Its overarching goal is to convene a cadre of experts wielding specialized knowledge, thereby injecting unique insights into the challenges and advancements associated with rare blood disorders. This collective effort

significantly enhances the overall depth and diversity of the discussions. This assembly serves as a hub, bringing together a diverse range of stakeholders committed to advancing the understanding and treatment of rare diseases within the MENA region. They form a dedicated community focused on driving progress in the comprehension and management of these rare diseases. It is with great honor and enthusiasm that I embrace the opportunity to partake in this transformative journey. This congress serves as a dynamic platform for fostering connections, igniting innovation, and propelling substantive progress in the field of rare diseases. Through collaboration and shared expertise, we aspire to make meaningful strides that resonate beyond the confines of this event, positively impacting the landscape of rare disease research and treatment. ❞