3 - 5 March 2023
Mövenpick Grand Al Bustan Dubai, UAE
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Prof. Maha Zaki

Prof. Maha Zaki

Professor, Clinical Genetics Department, Human Genetics & Genome Research Institute, National Research Centre, Cairo, Egypt

This annual meeting held by MENA Organization for Rare Diseases, will be the first distinctive meeting for rare diseases in the MENA region which I am honored to participate at. Professional scientists along with families will get together ...read more

Prof. Maha Zaki

Professor, Clinical Genetics Department, Human Genetics & Genome Research Institute, National Research Centre, Cairo, Egypt

Prof. Mohamed Miqdady

Prof. Mohamed Miqdady

Division Chief & Consultant, Pediatric Gastroenterology, Sheikh Khalifa Medical City, Abu Dhabi, UAE

Taking care of patients with rare disease present an immense challenge to the healthcare providers; the key to successfully managing these thought-provoking patients is a multi-disciplinary approach . From my previous attendance of The Rar...read more

Prof. Mohamed Miqdady

Division Chief & Consultant, Pediatric Gastroenterology, Sheikh Khalifa Medical City, Abu Dhabi, UAE

Dr. Anas Abu Hazeem

Dr. Anas Abu Hazeem

Consultant Pediatric Cardiology, KidsHeart Medical Center, Abu Dhabi, UAE

The annual meeting of MENA organization for Rare Diseases is a great place to learn from the best minds in the MENA region and the rest of the world about the rare Zebra illnesses that affect our population. I learned so much by attending t...read more

Dr. Anas Abu Hazeem

Consultant Pediatric Cardiology, KidsHeart Medical Center, Abu Dhabi, UAE

Dr. Khalid Al-Thihli

Dr. Khalid Al-Thihli

​Senior Consultant Clinical & Biochemical Genetics, ​Genetic & Developmental Medicine Clinic, Sultan Qaboos University Hospital, Muscat, Oman

In a world of complex challenges facing the patients, families, and healthcare professionals dealing with or living through rare genetic disorders, there is a compelling and urgent need for an initiative that brings patients, families, su...read more

Dr. Khalid Al-Thihli

​Senior Consultant Clinical & Biochemical Genetics, ​Genetic & Developmental Medicine Clinic, Sultan Qaboos University Hospital, Muscat, Oman

Dr. Mohamed Sulaiman

Dr. Mohamed Sulaiman

Consultant Pediatric Cardiology & Director, KidsHeart Medical Center, Abu Dhabi, Dubai, Al Ain, UAE

Rare diseases are usually disabling and the lack of proper knowledge on diagnosis and treatment often leads to poor prognosis and the result is debilitating not only to the patients but to their families as well. I am privileged to be a par...read more

Dr. Mohamed Sulaiman

Consultant Pediatric Cardiology & Director, KidsHeart Medical Center, Abu Dhabi, Dubai, Al Ain, UAE

Dr. Khalid Alsinaani

Dr. Khalid Alsinaani

Social media star & ambassador of determination

I am happy and honored to be part of this huge event helping people with rare diseases.

Dr. Khalid Alsinaani

Social media star & ambassador of determination

Ms. Nida Khan

Ms. Nida Khan

Clinical Dietitian, Neuropedia Children’s Neuroscience Center, Dubai, UAE

I believe, this meeting with families and medical professionals is a very big step in educating individuals, parents and caregivers of children affected with different rare diseases regarding the diverse approaches and treatment that are ...read more

Ms. Nida Khan

Clinical Dietitian, Neuropedia Children’s Neuroscience Center, Dubai, UAE

Dr. Zainab A. Malik

Dr. Zainab A. Malik

Consultant Pediatric Infectious Diseases, Mediclinic City Hospital, Dubai, UAE

The rare disease meeting in 2022 was the first of its kind in the region. Cutting-edge research, breakthroughs in genetics and rare diseases kept the attendees riveted throughout the conference. Families of children with rare diseases wer...read more

Dr. Zainab A. Malik

Consultant Pediatric Infectious Diseases, Mediclinic City Hospital, Dubai, UAE

Professor Ayman El-Hattab
MD, FAAP, FACMG

Chairman, MENA Organization for Rare Diseases Annual Meeting 2023
Founder & President, MENA Organization for Rare Diseases
Professor, College of Medicine, University of Sharjah
Consultant Clinical Genetics at Mediclinic City Hospital, University Hospital Sharjah, Kanad Hospital, KidsHeart, Neuropedia, and Genesis
welcome letter

MENA Organization for Rare Diseases will have its annual meeting in Dubai from 3 to 5 March 2023.

During this three-day conference, experts will deliver the most updated knowledge in presentations and workshops related to rare diseases in various medical fields such as neurology, cardiology, pulmonary, nephrology, endocrine, hematology, oncology, genetics, and ophthalmology. The meeting will also give opportunities for researchers to present their research in the field of rare diseases in the form of abstracts, presentations, and workshops.

Individuals affected with rare diseases and their families will also participate by attending lectures, having discussion with experts in rare diseases, and joining family group discussion.

Laboratories, pharmaceutical companies, clinics and hospitals, academic institutions, and support and advocacy groups focusing on rare diseases will also participate through booths, symposiums, and workshops.

The meeting will present awards to the best submitted abstracts, an outstanding mother of a child with a rare disease, an inspiring kid with a rare disease, a distinguished healthcare provider in the field of rare diseases, and an exceptional healthcare institute providing care for individuals with rare diseases.

Our goal is to bring all parties involved in rare diseases in one place to connect and exchange knowledge under one umbrella aiming to increase awareness, advance research, and provide better care for individuals with rare diseases.

We look forward to seeing you among us in the MENA Organization for Rare Diseases Annual Meeting 2023.

who will participate?

Medical doctors from different specialties

Nurses, therapies, and other healthcare provides

Patients and their families

Medical and medical sciences students

Pharmacists and laboratory personals

Researchers and scientists

Laboratories and pharmaceutical companies

Clinics and hospitals

Academic institutions

Community services

Support and advocacy groups

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scientific partner

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community partners

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media partners

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hospitality partner

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Chat with a representative

Address: MENA Organization for Rare Diseases FZ-LLC, SD2-137, 2nd floor, Dubai Science Park, Dubai, United Arab Emirates

Phone Number: +971 50 359 7474

Email Address: contact@menararediseases.com

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