Congress Chairman
Professor Ayman El-Hattab
Congress Chairman, MENA Congress for Rare Diseases
Professor, College of Medicine, University of Sharjah
Consultant Clinical Genetics at Burjeel Medical City, University Hospital Sharjah, Kanad Hospital, and Genesis Healthcare Center, UAE
Head of Scientific Committee
Prof. Khaled Musallam
Group Chief Research Officer, Burjeel Holdings
Adj Professor, Khalifa University, Abu Dhabi, UAE
Adj Professor, Weill Cornell Medicine, New York, USA
Scientific Committee Members
Dr. Anwar Baban
Consultant Clinical Genetics and Genomics, Rare Diseases and Medical Genetics Units, Bambino Gesu Children's Hospital & Research Institute, Rome, Italy
Prof. Brahim Tabarki Melaiki
Consultant Pediatric Neurology, Prince Sultan Military Medical City, Riyadh, Saudi Arabia
Adjunct Professor Pediatric Neurology, AlFaisal University, Riyadh, Saudi Arabia
Dr. Cristina Skrypnyk
Consultant Medical Geneticist, Genetics & Inherited Disorders, Al Jawhara Center for Molecular Medicine, Assistant Professor of Molecular Medicine, Arabian Gulf University & University Medical Clinics,
Chair, Rare Disease Campaign & Care for Rare Support Group, Manama, Kingdom of Bahrain
Dr. Hind Alsharhan
Assistant Professor, Medical and Biochemical Geneticist, Department of Pediatrics, Faculty of Medicine, Kuwait University, Kuwait City, Kuwait
Prof. Maha Zaki
Professor, Clinical Genetics Department,
Human Genetics & Genome Research Institute, National Research Centre
Professor, Genetics Department, Armed Forces College of Medicine, Cairo, Egypt
Dr. Pascale Karam
Associate Professor of Clinical Pediatrics and Inborn Errors of Metabolism, Department of Biochemistry and Molecular Genetics; and Head of Inborn Errors of Metabolism Program, Department of Pediatrics and Adolescent Medicine, American University of Beirut Medical Center, Beirut, Lebanon
Prof. Tawfeg Ben-Omran
Division Chief, Genetic & Genomic Medicine, Sidra Medicine
Senior Consultant, Medical Genetic Department, Hamad Medical Corporation
Professor, Weill Cornell Medical College, Doha, Qatar
Prof. Uğur Özbek
Chair, RAREBOOST Project
Director, Rare and Undiagnosed Disease Platform
Orphanet Country Coordinator, Izmir BioMedicine and Genome Center, Izmir, Turkey
Dr. Zahra Alsahlawi
Consultant Pediatric Inborn Errors of Metabolism and Clinical Genetics and Deputy Chief of Medical Staff, Salmaniya Medical Complex, Ministry of Health
Assistant Professor, Pediatric Department, Arabian Gulf University, Manama, Bahrain
Prof. Zuhair Al-Hassnan
Consultant, Department of Medical Genomics, Centre for Genomic Medicine, King Faisal Specialist Hospital and Research Center
Professor of Genetics, College of Medicine, Alfaisal University, Riyadh, Saudi Arabia
Session and Symposium Chairpersons
Prof. Amro El-Saddik
Professor of Clinical Pathology, Mansoura University, Egypt
Managing Director of Creative Crew, Medical Education services, Dubai, UAE
Dr. Anwar Baban
Consultant Clinical Genetics and Genomics, Rare Diseases and Medical Genetics Units, Bambino Gesu Children's Hospital & Research Institute, Rome, Italy
Mrs. Areen Abuhejleh
Head of Health Programs, Special Olympics UAE, Abu Dhabi, UAE
Prof. Asma Deeb
Division Chair and Consultant, Pediatric Endocrinology, Sheikh Shakhbout Medical City, Abu Dhabi, UAE
Professor, Faculty of Health and Science, Khalifa University, Abu Dhabi, UAE
Professor, College of Medicine, Gulf University, Ajman, UAE
Dr. Bahaa Jalal
Director, Center for the Disabled, Assiut University, Assiut, Egypt
Director, Help Center for the Middle East and North Africa, Kuwait, Kuwait
Prof. Bassam Ali
Professor in Molecular & Genetic Medicine and Leader of the Genetics & Development Research Priority Group, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, UAE
Dr. Binu George
Consultant Neurodevelopmental Disabilities and Pediatrics, Sheikh Khalifa Medical City, Abu Dhabi, UAE
Prof. Brahim Tabarki Melaiki
Consultant Pediatric Neurology, Prince Sultan Military Medical City, Riyadh, Saudi Arabia
Adjunct Professor Pediatric Neurology, AlFaisal University, Riyadh, Saudi Arabia
Prof. Hatoon Ezzat
Advisor to the Vice Minister and the Director of Blood Disorder Administration, Saudi Minstry of Health, Riyadh, Saudi Arabia
Professor of Hematology and BMT, University of British Columbia, Canada and University of Dar Al Uloom, Saudi Arabia
Dr. Joanne Sadier
Senior Consultant, Department of Public Health, Dubai Health Authority, Dubai, UAE
Prof. Khaled Musallam
Group Chief Research Officer, Burjeel Holdings
Adj Professor, Khalifa University, Abu Dhabi, UAE
Adj Professor, Weill Cornell Medicine, New York, USA
Dr. Khawla Al Shehhi
Philosophy in Education (Special and Inclusive), The British University in Dubai and Executive Director Officer, Higher Colleges of Technology, Ras Al Khaimah, UAE
Dr. Hassan Jaafar
Consultant Medical Oncology, Burjeel Medical City, Abu Dhabi, UAE
Dr. Hind Alsharhan
Assistant Professor, Medical and Biochemical Geneticist, Department of Pediatrics, Faculty of Medicine, Kuwait University, Kuwait City, Kuwait
Dr. Mehtab Iqbal
Consultant Paediatric Neurologist & Division Chief Tawam Hospital, Al Ain, Abu Dhabi, UAE
Prof. Mohamed Abuzakouk
Department Chair and Consultant, Allergy and Clinical Immunology, Cleveland Clinic Abu Dhabi, Abu Dhabi, UAE
Dr. Muna Al Saffar
Director of Genetic Counseling Program, Assistant Professor, and DOH Licensed and Canadian Board Certified Genetic Counselor, Department of Genetic and Genomics, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, UAE
Dr. Nameer Al-Saadawi
Deputy Chief Medical Officer and Clinical Director of Abu Dhabi Bone Marrow Transplant Program, Abu Dhabi Stem Cell Center, Abu Dhabi, UAE
Prof. Nicholas Johnson
Director of the Center for Inherited Myology Research (CIMR), Professor, and Vice Chair of Research in Neurology, Virginia Commonwealth University, Richmond, Virginia, USA
Ms. Nipa Bhuptani
Founder and Chief Values Officer, Applied & Behavioral Training Institutes, Abu Dhabi, UAE
Prof. Osama Aldirbashi
Senior Consultant Clinical Scientist, Department of Laboratory Medicine and Pathology, Hamad Medical Corporation
Clinical Professor, College of Health Sciences, Qatar University
Professor Adjunct, College of Health & Life Sciences, Hamad Bin Khalifa University, Doha, Qatar
Mrs. Rana Abu Khadra
Business Excellence Consultant, Co-founder of CureSCG, and Mother of Child with Limb Girdle Muscular Dystrophy, Abu Dhabi, UAE
Dr. Rania Al Dweik
Associate Professor in Public Health and Epidemiology and Associate Dean of Academic Affairs, College of Health Sciences, Abu Dhabi University, Abu Dhabi, UAE
Dr. Rasheed Alhammadi
Division Director, Medical Research and Development, Center of Research and Innovation, Abu Dhabi Department of Health, Abu Dhabi, UAE
Mrs. Renate Baur-Richter
Executive Director, Access for All - Institute for Accessibility and Inclusion, Abu Dhabi, UAE
Dr. Rola Ba-Abbad
Senior Consultant Ophthalmologist, Ocular Genetics, Electrophysiology of Vision & Medical Retina, King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia
Dr. Shiamaa Almashhadani
Senior Specialist Public Health Dentistry, Head of Promotion and Prevention, and Clinical lead for Dental Home Services, Dubai Health
Dental Internship Supervisory Program, Hamdan Bin Mohammed College of Dental Medicine, Mohammed Bin Rashid University (HBMCDM-MBRU), Dubai, UAE
Mr. Svein Olaf Olsen
President of the International Huntington Association, Søgne, Norway
Founder and Owner of Anzyz Technologies AS, Kristiansand, Norway
Ms. Tanuka Gupta
Neuroaffirming Senior Clinical Psychologist, Al Noor Training Centre for People of Determination, Dubai, UAE
Dr. Wafaa Ayesh
Head of Nutrition Department and Consultant Clinical Dietitian, Tadawi Hospital, Dubai, UAE
Dr. Zeinab Alloub
Consultant Pediatric Neurodevelopment, Al Jalila Children's Speciality Hospital
Assistant Professor, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE