MENA Congress for Rare Diseases
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Congress Chairman

Professor Ayman El-Hattab

Professor Ayman El-Hattab

Congress Chairman, MENA Congress for Rare Diseases

Professor, College of Medicine, University of Sharjah

Consultant Clinical Genetics at Burjeel Medical City, University Hospital Sharjah, Kanad Hospital, and Genesis Healthcare Center, UAE

AE

Head of Scientific Committee

Prof. Khaled Musallam

Prof. Khaled Musallam

Group Chief Research Officer, Burjeel Holdings

Adj Professor, Khalifa University, Abu Dhabi, UAE

Adj Professor, Weill Cornell Medicine, New York, USA

AE

Scientific Committee Members

Dr. Anwar Baban

Dr. Anwar Baban

Consultant Clinical Genetics and Genomics, Rare Diseases and Medical Genetics Units, Bambino Gesu Children's Hospital & Research Institute, Rome, Italy

IT
Prof. Brahim Tabarki Melaiki

Prof. Brahim Tabarki Melaiki

Consultant Pediatric Neurology, Prince Sultan Military Medical City, Riyadh, Saudi Arabia

Adjunct Professor Pediatric Neurology, AlFaisal University, Riyadh, Saudi Arabia

SA
Dr. Cristina Skrypnyk

Dr. Cristina Skrypnyk

Consultant Medical Geneticist, Genetics & Inherited Disorders, Al Jawhara Center for Molecular Medicine, Assistant Professor of Molecular Medicine, Arabian Gulf University & University Medical Clinics,

Chair, Rare Disease Campaign & Care for Rare Support Group, Manama, Kingdom of Bahrain

BH
Dr. Hind Alsharhan

Dr. Hind Alsharhan

Assistant Professor, Medical and Biochemical Geneticist, Department of Pediatrics, Faculty of Medicine, Kuwait University, Kuwait City, Kuwait

KW
Prof. Maha Zaki

Prof. Maha Zaki

Professor, Clinical Genetics Department,

Human Genetics & Genome Research Institute, National Research Centre

Professor, Genetics Department, Armed Forces College of Medicine, Cairo, Egypt

EG
Dr. Pascale Karam

Dr. Pascale Karam

Associate Professor of Clinical Pediatrics and Inborn Errors of Metabolism, Department of Biochemistry and Molecular Genetics; and Head of Inborn Errors of Metabolism Program, Department of Pediatrics and Adolescent Medicine, American University of Beirut Medical Center, Beirut, Lebanon

LB
Prof. Tawfeg Ben-Omran

Prof. Tawfeg Ben-Omran

Division Chief, Genetic & Genomic Medicine, Sidra Medicine

Senior Consultant, Medical Genetic Department, Hamad Medical Corporation

Professor, Weill Cornell Medical College, Doha, Qatar

QA
Prof. Uğur Özbek

Prof. Uğur Özbek

Chair, RAREBOOST Project

Director, Rare and Undiagnosed Disease Platform

Orphanet Country Coordinator, Izmir BioMedicine and Genome Center, Izmir, Turkey

TR
Dr. Zahra Alsahlawi

Dr. Zahra Alsahlawi

Consultant Pediatric Inborn Errors of Metabolism and Clinical Genetics and Deputy Chief of Medical Staff, Salmaniya Medical Complex, Ministry of Health

Assistant Professor, Pediatric Department, Arabian Gulf University, Manama, Bahrain

BH
Prof. Zuhair Al-Hassnan

Prof. Zuhair Al-Hassnan

Consultant, Department of Medical Genomics, Centre for Genomic Medicine, King Faisal Specialist Hospital and Research Center

Professor of Genetics, College of Medicine, Alfaisal University, Riyadh, Saudi Arabia

SA

Session and Symposium Chairpersons

Prof. Amro El-Saddik

Prof. Amro El-Saddik

Professor of Clinical Pathology, Mansoura University, Egypt

Managing Director of Creative Crew, Medical Education services, Dubai, UAE

AE
Dr. Anwar Baban

Dr. Anwar Baban

Consultant Clinical Genetics and Genomics, Rare Diseases and Medical Genetics Units, Bambino Gesu Children's Hospital & Research Institute, Rome, Italy

IT
Mrs. Areen Abuhejleh

Mrs. Areen Abuhejleh

Head of Health Programs, Special Olympics UAE, Abu Dhabi, UAE

AE
Prof. Asma Deeb

Prof. Asma Deeb

Division Chair and Consultant, Pediatric Endocrinology, Sheikh Shakhbout Medical City, Abu Dhabi, UAE

Professor, Faculty of Health and Science, Khalifa University, Abu Dhabi, UAE

Professor, College of Medicine, Gulf University, Ajman, UAE

AE
Dr. Bahaa Jalal

Dr. Bahaa Jalal

Director, Center for the Disabled, Assiut University, Assiut, Egypt

Director, Help Center for the Middle East and North Africa, Kuwait, Kuwait

KW
Prof. Bassam Ali

Prof. Bassam Ali

‏‏‎Professor in Molecular & Genetic Medicine and Leader of the Genetics & Development Research Priority Group, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, UAE

AE
Dr. Binu George

Dr. Binu George

Consultant Neurodevelopmental Disabilities and Pediatrics, Sheikh Khalifa Medical City, Abu Dhabi, UAE

AE
Prof. Brahim Tabarki Melaiki

Prof. Brahim Tabarki Melaiki

Consultant Pediatric Neurology, Prince Sultan Military Medical City, Riyadh, Saudi Arabia

Adjunct Professor Pediatric Neurology, AlFaisal University, Riyadh, Saudi Arabia

SA
Prof. Hatoon Ezzat

Prof. Hatoon Ezzat

Advisor to the Vice Minister and the Director of Blood Disorder Administration, Saudi Minstry of Health, Riyadh, Saudi Arabia

Professor of Hematology and BMT, University of British Columbia, Canada and University of Dar Al Uloom, Saudi Arabia

SA
Dr. Joanne Sadier

Dr. Joanne Sadier

Senior Consultant, Department of Public Health, Dubai Health Authority, Dubai, UAE

AE
Prof. Khaled Musallam

Prof. Khaled Musallam

Group Chief Research Officer, Burjeel Holdings

Adj Professor, Khalifa University, Abu Dhabi, UAE

Adj Professor, Weill Cornell Medicine, New York, USA

AE
Dr. Khawla Al Shehhi

Dr. Khawla Al Shehhi

Philosophy in Education (Special and Inclusive), The British University in Dubai and Executive Director Officer, Higher Colleges of Technology, Ras Al Khaimah, UAE

AE
Dr. Hassan Jaafar

Dr. Hassan Jaafar

Consultant Medical Oncology, Burjeel Medical City, Abu Dhabi, UAE

AE
Dr. Hind Alsharhan

Dr. Hind Alsharhan

Assistant Professor, Medical and Biochemical Geneticist, Department of Pediatrics, Faculty of Medicine, Kuwait University, Kuwait City, Kuwait

KW
Dr. Mehtab Iqbal

Dr. Mehtab Iqbal

Consultant Paediatric Neurologist & Division Chief Tawam Hospital, Al Ain, Abu Dhabi, UAE

AE
Prof. Mohamed Abuzakouk

Prof. Mohamed Abuzakouk

Department Chair and Consultant, Allergy and Clinical Immunology, Cleveland Clinic Abu Dhabi, Abu Dhabi, UAE

AE
Dr. Muna Al Saffar

Dr. Muna Al Saffar

Director of Genetic Counseling Program, Assistant Professor, and DOH Licensed and Canadian Board Certified Genetic Counselor, Department of Genetic and Genomics, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, UAE

AE
Dr. Nameer Al-Saadawi

Dr. Nameer Al-Saadawi

Deputy Chief Medical Officer and Clinical Director of Abu Dhabi Bone Marrow Transplant Program, Abu Dhabi Stem Cell Center, Abu Dhabi, UAE

AE
Prof. Nicholas Johnson

Prof. Nicholas Johnson

Director of the Center for Inherited Myology Research (CIMR), Professor, and Vice Chair of Research in Neurology, Virginia Commonwealth University, Richmond, Virginia, USA

US
Ms. Nipa Bhuptani

Ms. Nipa Bhuptani

Founder and Chief Values Officer, Applied & Behavioral Training Institutes, Abu Dhabi, UAE

AE
Prof. Osama Aldirbashi

Prof. Osama Aldirbashi

Senior Consultant Clinical Scientist, Department of Laboratory Medicine and Pathology, Hamad Medical Corporation

Clinical Professor, College of Health Sciences, Qatar University

Professor Adjunct, College of Health & Life Sciences, Hamad Bin Khalifa University, Doha, Qatar

QA
Mrs. Rana Abu Khadra

Mrs. Rana Abu Khadra

Business Excellence Consultant, Co-founder of CureSCG, and Mother of Child with Limb Girdle Muscular Dystrophy, Abu Dhabi, UAE

AE
Dr. Rania Al Dweik

Dr. Rania Al Dweik

Associate Professor in Public Health and Epidemiology and Associate Dean of Academic Affairs, College of Health Sciences, Abu Dhabi University, Abu Dhabi, UAE

AE
Dr. Rasheed Alhammadi

Dr. Rasheed Alhammadi

Division Director, Medical Research and Development, Center of Research and Innovation, Abu Dhabi Department of Health, Abu Dhabi, UAE

AE
Mrs. Renate Baur-Richter

Mrs. Renate Baur-Richter

Executive Director, Access for All - Institute for Accessibility and Inclusion, Abu Dhabi, UAE

AE
Dr. Rola Ba-Abbad

Dr. Rola Ba-Abbad

Senior Consultant Ophthalmologist, Ocular Genetics, Electrophysiology of Vision & Medical Retina, King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia

SA
Dr. Shiamaa Almashhadani

Dr. Shiamaa Almashhadani

Senior Specialist Public Health Dentistry, Head of Promotion and Prevention, and Clinical lead for Dental Home Services, Dubai Health

Dental Internship Supervisory Program, Hamdan Bin Mohammed College of Dental Medicine, Mohammed Bin Rashid University (HBMCDM-MBRU), Dubai, UAE

AE
Mr. Svein Olaf Olsen

Mr. Svein Olaf Olsen

President of the International Huntington Association, Søgne, Norway

Founder and Owner of Anzyz Technologies AS, Kristiansand, Norway

NO
Ms. Tanuka Gupta

Ms. Tanuka Gupta

Neuroaffirming Senior Clinical Psychologist, Al Noor Training Centre for People of Determination, Dubai, UAE

AE
Dr. Wafaa Ayesh

Dr. Wafaa Ayesh

Head of Nutrition Department and Consultant Clinical Dietitian, Tadawi Hospital, Dubai, UAE

AE
Dr. Zeinab Alloub

Dr. Zeinab Alloub

Consultant Pediatric Neurodevelopment, Al Jalila Children's Speciality Hospital

Assistant Professor, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

AE
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