MENA Congress for Rare Diseases
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Scientific Main Track: Al Thuraya A&B

Opening Session

Chairperson: Prof. Ayman El-Hattab
Consultant Clinical Genetics at Burjeel Medical City, University Hospital Sharjah, Kanad Hospital, and Genesis Healthcare Center, UAE

09:30 AM - 09:40 AM

Opening remarks: MENA Congress for Rare Diseases

Prof. Ayman El-Hattab

Consultant Clinical Genetics at Burjeel Medical City, University Hospital Sharjah, Kanad Hospital, and Genesis Healthcare Center, UAE


09:40 AM - 10:00 AM

Bridging global commitments and regional realities: the MENA region's role in shaping the impact of the world health assembly resolution on rare diseases

Ms. Alexandra Heumber Perry

Chief Executive Officer, Rare Diseases International, Geneva, Switzerland


10:00 AM - 10:30 AM

Opening ceremony and award distribution

10:30 AM - 11:00 AMCoffee Break

Satellite Symposium: Al Thuraya B

1st MENA Summit for Gene and Cell Therapy

Chairperson: Dr. Nameer Al-Saadawi
Deputy Chief Medical Officer and Clinical Director of Abu Dhabi Bone Marrow Transplant Program, Abu Dhabi Stem Cell Center, Abu Dhabi, UAE

11:00 AM - 11:20 AM

Revolutionizing healthcare: the rise of gene therapy in the UAE - ADSCC experience

Dr. Mohamed Abuhaleeqa

Consultant Hematology and Bone Marrow Transplant and Chair of Academic Affairs Department, Abu Dhabi Stem Cells Center (ADSCC), Abu Dhabi, UAE


11:20 AM - 11:40 AM

The promise of gene therapies for neuromuscular disorders: experience from Qatar

Prof. Tawfeg Ben-Omran

Division Chief & Senior Consultant, Medical Genetic Department, Hamad Medical Corporation & Sidra Medicine, Doha, Qatar


11:40 AM - 12:00 PM

Stem cell therapy for cardiac diseases, the past, the present, the future

Dr. Yahya Kiwan

Senior Consultant Interventional Cardiologist and Stem Cells and Regenerative Medicine Specialist, Dr Sulaiman Al Habib Hospital, Dubai, UAE


12:00 PM - 12:20 PM

Is the stem cell the hope for neurodegenerative disorder

Dr. Mohamad Al Hakim

Founder and Chairman, American Spine Center, Dubai, UAE


12:20 PM - 12:40 PM

Cord blood unit is not just a bag of blood

Dr. Hatim Sidahmed

Head of Cord Blood Bank, M42, Abu Dhabi, UAE


12:40 PM - 01:00 PM

Future of cell and gene therapy for rare diseases

Dr. Shaikha Almazrouei

Researcher of Genomics, Technology Innovation Institute, Abu Dhabi, UAE

Satellite Symposium: Al Thuraya A

2nd MENA Summit for Preventive Medicine

Chairperson: Dr. Nawal Al Kaabi
Consultant Pediatric Infectious Diseases, Sheikh Khalifa Medical City, Abu Dhabi, UAE

11:00 AM - 11:20 AM

Proactive strategies for effective disease prevention

Dr. Nawal Al Kaabi

Consultant Pediatric Infectious Diseases, Sheikh Khalifa Medical City, Abu Dhabi, UAE


11:20 AM - 11:40 AM

Unlocking the secrets to Alzheimer’s prevention: strategies for a healthier future

Dr. Laila Abdel Wareth

Chief Executive Officer, National Reference Laboratory (NRL) and Adjunct Clinical Professor, Department of Pathology, College of Medicine & Health Sciences, Khalifa University, Abu Dhabi, UAE


11:40 AM - 12:00 PM

Maternal immunizations: current recommendations

Dr. Huda Aldhanhani

Consultant Pediatric Infectious Diseases, Sheikh Khalifa Medical City, Abu Dhabi, UAE


12:00 PM - 12:20 PM

Obesity and chronic disease prevention: the interconnected web

Dr. Mohammad Fityan

Chair of Medicine Division, Consultant Internal Medicine and Obesity Medicine, and Head of Weight Management Clinic, Burjeel Medical City, Abu Dhabi, UAE


12:20 PM - 12:40 PM

TBA

TBA


12:40 PM - 01:00 PM

Challenges in prenatal screening

Dr. Hisham Mirghani

Consultant and Chair of Fetal Medicine Services, NMC Royal Hospital, Abu Dhabi, UAE

Satellite Symposium: Al Mas Hall

2nd MENA Summit for Genetic Counselors - Part 1

Chairperson: Dr. Muna Al Saffar
Director of Genetic Counseling Program and Assistant Professor, Department of Genetic and Genomics, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, UAE

11:00 AM - 11:20 AM

The role of genetic counselors in genomic era

Dr. Muna Al Saffar

Director of Genetic Counseling Program and Assistant Professor, Department of Genetic and Genomics, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, UAE


11:20 AM - 11:40 AM

The changing face of genetic counseling in the era of precision medicine: experience from Qatar

Dr. Reem Al-Sulaiman

Acting Chairman of Medical Genetics Department, Sr. Consultant Genetic Counseling (ABGC Board), Lead of Genetic Counseling Directory, Hamad Medical Corporation, Doha, Qatar


11:40 AM - 12:00 PM

Genetic counselling achievements and milestones: insights from the Oman

Ms. Khalsa Al-Kharusi

Genetic counsellor, Genetics and Developmental Medicine Clinic, Sultan Qaboos University Hospital, Muscat, Oman


12:00 PM - 12:20 PM

Cancer genetic counseling service outcomes: a single center experience in Abu Dhabi

Mr. Rifaat R. Rawashdeh

DOH Licensed, ABGC Certified Genetic Counselor, Oncology Institute, Cleveland Clinic Abu Dhabi, UAE


12:20 PM - 12:40 PM

Genetic counseling in reproductive decision-making

Ms. Laura Paquette

DOH Licensed & ABGC Certified Genetic Counselor, Abu Dhabi Health Services Company (SEHA), Abu Dhabi, UAE


12:40 PM - 01:00 AM

Savings by genetic counselors in a tertiary pediatric hospital

Mrs. Shruti Shenbagam

Certified Genetic Counselor, Al Jalila Children’s Specialty Hospital, Dubai, UAE

01:00 PM - 02:00 PMLunch Break

Satellite Symposium: Al Thuraya B

1st MENA Summit for Hemoglobinopathies

Chairperson: Prof. Khaled Musallam
Group Chief Research Officer, Burjeel Holdings, Abu Dhabi, UAE

02:00 PM - 02:20 PM

Beta-thalassemia in the era of disease-modifying therapies

Prof. Ali Taher

Associate VP for Academic Centers, Development, and External Affairs, Director for Naef K. Basile Cancer Institute, and Founding Director of Fellowship and Residents Research Program, Faculty of Medicine, American University of Beirut, Beirut, Lebanon


02:20 PM - 02:40 PM

Alpha-thalassemia revisited

Dr. Abdullah Al Zayed

Consultant Internist and Hematologist, Qatif Health Network, Qatif, Saudi Arabia


02:40 PM - 03:00 PM

Novel targets for pharmacologic management of sickle cell disease

Prof. Salam Alkindi

Professor, Department of Hematology, Sultan Qaboos University, Muscat, Oman


03:00 PM - 03:20 PM

Iron overload in hemoglobinopathies: conquered or forgotten?

Prof. Mohamed Yassin

Head of Hematology Department, Senior Consultant Hematology and BMT, and Program Director of Hematology Fellowship Program, Hamad Medical Corporation, Doha, Qatar


03:20 PM - 03:40 PM

Hemoglobinopathies burden in the UAE

Dr. Hany Dewedar

Consultant Hematology, Dubai Thalassemia Centre, Dubai Health, Dubai, UAE


03:40 PM - 04:00 PM

The Saudi Ministry of Heath hemoglobinopathies registry: bridging evidence with practice

Prof. Hatoon Ezzat

Advisor to the Vice Minister and the Director of Blood Disorder Administration, Saudi Minstry of Health, Riyadh, Saudi Arabia

Satellite Symposium: Al Thuraya A

1st MENA Summit for Neurotherapeutic Advancements

Chairperson: Prof. Brahim Tabarki Melaiki
Consultant Pediatric Neurology, Prince Sultan Military Medical City, Riyadh, Saudi Arabia

02:00 PM - 02:20 PM

Treatable metabolic and genetic disorders mimicking cerebral palsy

Prof. Brahim Tabarki Melaiki

Consultant Pediatric Neurology, Prince Sultan Military Medical City, Riyadh, Saudi Arabia


02:20 PM - 02:40 PM

Vitamins-responsive neurological disorders: cheap to treat but too expensive to miss!

Dr. Mohamed Babiker

Consultant Pediatric Neurology and Director of Pediatric Neurology Residency Program, Al Jalila Children's Speciality Hospital


02:40 PM - 03:00 PM

TBA

TBA


03:00 PM - 03:20 PM

Shedding light on rare treatable movement disorders

Dr. Dina Saleh

Head of Department and Consultant, Pediatric Neurology, Reem Hospital, Abu Dhabi, UAE


03:20 PM - 03:40 PM

Spinal muscle atrophy: Egyptian experience with different modalities of intervention

Prof. Maha Zaki

Professor, Clinical Genetics Department, Human Genetics & Genome Research Institute, National Research Centre, Cairo, Egypt


03:40 PM - 04:00 PM

TBA

TBA

Satellite Symposium: Al Mas Hall

1st MENA Summit for Autism and Neurodivergence

Chairperson: Ms. Tanuka Gupta
Neuroaffirming Senior Clinical Psychologist, Al Noor Training Centre for People of Determination, Dubai, UAE

02:00 PM - 02:20 PM

Understanding and embracing neurodivergence: key to fostering neuroinclusive spaces

Dr. Haneesha Pinnamaraju

Neurodevelopmental & Behavioral Pediatrics, Neuropedia Children's Neuroscience Center, Dubai & Sharjah, UAE


02:20 PM - 02:40 PM

Neurodiversity 101: understanding the spectrum of human minds and body

Mrs. Karen Kehdy

Neurodiversity Advocate, Writer, and Mother of Two Neurodivergent Children, Dubai, UAE


02:40 PM - 03:00 PM

What causes autism? - Let’s try again

Dr. Arif A. Khan

Founder & CEO, Neuropedia Children’s Neuroscience Center, Consultant Pediatric Neurologist, Dubai, UAE


03:00 PM - 03:20 PM

Neuroaffirming approach: shifting from a deficit-lens to a strength-based approach

Ms. Shija Sapru

Neurodiversity and Strength-Based Approach Advocate, Certified in Twice Exceptional (2e) Education from Bridges Graduate School, and Supporter of Alternative Schooling Approaches, Dubai, UAE


03:20 PM - 03:40 PM

My journey as an artist on the autism spectrum

Mr. Abdulla Lutfi

Autistic Savant Artist, Dubai, UAE


03:40 PM - 04:00 PM

TBA

TBA

04:00 PM - 04:30 PMCoffee Break

Satellite Symposium: Al Thuraya B

1st MENA Summit for Precision Medicine

Satellite Symposium: Al Thuraya A

1st MENA Summit for Inclusion and Diversity

Satellite Symposium: Al Mas Hall

2nd MENA Summit for Genetic Counselors - Part 2

Chairperson: Dr. Muna Al Saffar
Director of Genetic Counseling Program and Assistant Professor, Department of Genetic and Genomics, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, UAE

04:30 PM - 05:00 PM

Ethical dilemmas and psychosocial considerations in genetic counseling: navigating IVF in the Arab world

Mrs. Dianne Alameddine

ABGC Certified and DHA Licensed Genetic Counselor, Igenomix, Dubai, UAE

Mrs. Lea Abed

EBMG Certified and DHA Licensed Genetic Counselor, Igenomix, Dubai, UAE


05:00 PM - 05:20 PM

The utility of rapid whole genome sequencing in an ICU setting

Mr. Alan Taylor

Certified Genetic Counselor, Al Jalila Children’s Specialty Hospital, Dubai, UAE


05:20 PM - 05:40 PM

The role of genetic counseling in addressing age-related diseases

Ms. Maria Antonela Axinte

Genetic Counselor and Founder, DNA Longevity, Dubai, UAE


05:40 PM - 06:00 PM

Bridging the gap: the lab genetic counselor’s experience and impact

Mrs. Sonika Sachanandani-Phulwani

Licensed Genetic Counselor, M42 (Biogenix), Abu Dhabi, UAE


06:00 PM - 06:20 PM

A guide to effective engagement in the Arab world: strategies for genetic counselors, experts, and scientists

Mrs. Hibat Omer

Founder of Genomics Hub, Abu Dhabi, UAE

برنامج تدريبي: قاعة الماس

منهجية بوب لتأهيل الحواس (اليوم الأول)

رئيس الجلسة: أ.د بهاء الدين جلال
مدير مركز هيلب للشرق الاوسط وشمال افريقيا, مدينة الكويت, الكويت

05:30 PM - 09:30 PM

أسس علم تحليل الحواس

أ.د بهاء الدين جلال

مدير مركز هيلب للشرق الاوسط وشمال افريقيا, مدينة الكويت, الكويت

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