UAEGDASZGRC

international speakers

Alphabetically ordered

Mrs. Amanda Moore
Mrs. Amanda Moore

‏‏‎ ‎

CEO, Angelman Syndrome Foundation, Aurora, Illinois, USA

Dr. Anne Wheeler
Dr. Anne Wheeler

PhD

Psychologist, Carolina Institute for Developmental Disabilities

Associate Professor, University of North Carolina at Chapel Hill, North Carolina, USA

Prof. Christian Schaaf
Prof. Christian Schaaf

MD, PhD

Director & Chairman, Institute of Human Genetics, Heidelberg University Hospital

Professor, Heidelberg University, Heidelberg, Germany

Dr. Cristina Skrypnyk
Dr. Cristina Skrypnyk

MD, PhD

Consultant Medical Geneticist, Genetics & Inherited Disorders, Al Jawhara Center for Molecular Medicine

Assistant Professor of Molecular Medicine, Arabian Gulf University & University Medical Clinics

Chair, Rare Disease Campaign & CareforRare Support Group, Kingdom of Bahrain

Dr. Elizabeth Jalazo
Dr. Elizabeth Jalazo

MD

Director, Clinical Integration, Angelman Syndrome Foundation, Aurora, Illinois

Geneticist & Pediatrician, University of North Carolina at Chapel Hill, North Carolina, USA

Ms. Elizabeth Vroom
Ms. Elizabeth Vroom

‏‏‎ ‎

Chair & Co-Founder, World Duchenne Organization, Amsterdam, The Netherlands

Prof. Fernando Scaglia
Prof. Fernando Scaglia

MD, FACMG

Professor, Department of Molecular and Human Genetics, Baylor College of Medicine and Texas Children's Hospital, Houston, USA

Co-Director, Pediatric Mitochondrial Medicine Clinic, Texas Children's Hospital, Houston, USA

Director, BCM-CUHK Center of Medical Genetics, Prince of Wales Hospital, Hong Kong

Mrs. Hanaa El-Sadat
Mrs. Hanaa El-Sadat

‏‏‎ ‎

Chairwoman Board of Trustees, Yasmin Elsamra Foundation for Epidermolysis Bullosa, Debra-Egypt, Cairo, Egypt

Member of Executive Committee of Debra International, Vienna, Austria

Prof. Hatem El-Shanti
Prof. Hatem El-Shanti

MD

Director, Division of Medical Genetics & Genomics, Stead Family Department of Pediatrics, University of Iowa Healthcare

Richard O. Jacobson Foundation Chair, Pediatrics, Carver College of Medicine, University of Iowa, Iowa, USA

Prof. Imelda de Groot
Prof. Imelda de Groot

‏‏‎ ‎

Program Leader, Accredited Duchenne Centers Program, Retired Rehabilitation Specialist, Radboud University Medical Center, Nijmegen, The Netherlands

Prof. Jihwan Song
Prof. Jihwan Song

D.Phil.

Professor, CHA Stem Cell Institute, CHA University, Seongnam, Republic of Korea

Founder & CEO, iPS Bio, Inc., Seongnam, Republic of Korea

Dr. Jorge, Basto pinto
Dr. Jorge, Basto pinto

‏‏‎ ‎

Chief Scientific Medical Director, Centogene, Rostock, Germany

Prof. Karen Gripp
Prof. Karen Gripp

MD, FACMG, FAAP

Chief, Division of Medical Genetics, Nemours Children’s Hospital, Delaware, USA

Professor, S. Kimmel Medical College, T. Jefferson University, Philadelphia, USA

Chief Medical Officer, FDNA, Sunrise, USA

Dr. Khalid Al-Thihli
Dr. Khalid Al-Thihli

MD, FRCPC, FCCMG

​Senior Consultant Clinical & Biochemical Genetics, ​Genetic & Developmental Medicine Clinic, Sultan Qaboos University Hospital, Muscat, Oman

Prof. Maha Zaki
Prof. Maha Zaki

MD, Ph.D

Professor, Clinical Genetics Department, Human Genetics & Genome Research Institute, National Research Centre.

Professor, Genetics Department, Armed Forces College of Medicine, Cairo, Egypt

Dr. Maryam Al Shehhi
Dr. Maryam Al Shehhi

MD, DCH, MRCPCH, CABP, OMSB, RCPI

Unit Head & Consultant Clinical Genetics, National Genetics Center, Royal Hospital

Associate Program Director Pediatrics Residency, Oman Medical Specialty Board

Co-founder of Oman Rare Disease Support Group, Muscat, Sultanate of Oman

Prof. Michael Hayden
Prof. Michael Hayden

MBChB, PhD

CEO, Prilenia Therapeutics, Naarden, The Netherlands

Professor, University of British Columbia, Vancouver, Canada

Dr. Michael Segal
Dr. Michael Segal

MD PhD

Chief Scientist, SimulConsult, Massachusetts, USA

Ms. Nicoletta Media
Ms. Nicoletta Media

‏‏‎ ‎

Community Manager, World Duchenne Organization

Project Manager, Gemelli University Hospital, Rome, Italy

Prof. Rosanna Weksberg
Prof. Rosanna Weksberg

PhD, MD, FRCPC

Clinical Geneticist, Division of Clinical and Metabolic Genetics, the Hospital for Sick Children

Professor, Department of Pediatrics and Molecular Genetics, Institute of Medical Science, University of Toronto

Senior Associate Scientist, Genetics and Genome Biology Program, the Hospital for Sick Children, Toronto, Canada

Dr. Sandra Gutierrez
Dr. Sandra Gutierrez

PhD

Dentist & Researcher, Dental Research Center, School of Dentistry, Pontificia Javeriana University

Associate Professor, Molecular Biology & Genetics, School of Dentistry, Pontificia Javeriana University & UNICIEO university, Bogota, Colombia

Prof. Siham Elalaoui
Prof. Siham Elalaoui

MD, PhD

Professor, Department of Medical Genetics, National Institute of Health & Faculty of Medicine and Pharmacy, Mohammed V University, Rabat, Morocco

Ms. Suzie-Ann Bakker
Ms. Suzie-Ann Bakker

‏‏‎ ‎

Communications & Events Manager, World Duchenne Organization, Amsterdam, The Netherlands

Mr. Svein Olaf Olsen
Mr. Svein Olaf Olsen

‏‏‎ ‎

President of the International Huntington Association, Søgne, Norway

Founder and owner of Anzyz Technologies AS, Grimstad, Norway

Dr. Tawfeg Ben-Omran
Dr. Tawfeg Ben-Omran

MD, FRCPC, FCCMG, FACMG

Division Chief, Genetic & Genomic Medicine, Sidra Medicine

Senior Consultant, Medical Genetic Department, Hamad Medical Corporation

Associate Professor, Weill Cornell Medical College, Doha, Qatar

uae-based speakers

Alphabetically ordered

Mr. Abdulla Alsoori Alzaabi
Mr. Abdulla Alsoori Alzaabi

‏‏‎ ‎

Writer, Author, and Founder & Chairman of the Yes2MyGiving Team, UAE

Master in Education-Information and Communication Technology, The British University in Dubai, Dubai, UAE

Ms. Abir Massaad
Ms. Abir Massaad

PhD

Clinical Team Supervisor & Senior Pediatric Physical Therapist, High Hopes Pediatric Therapy Center, Dubai, UAE

Master Aggelos A. Ahuja
Master Aggelos A. Ahuja

‏‏‎ ‎

13 Years Old Child, Dubai, UAE

Dr. Aman Sohal
Dr. Aman Sohal

MBBS, FRCPCH, CCT (UK)

Founding Partner & Clinical Director, Neuropedia Children’s Neuroscience Center

Consultant Pediatric Neurology & Neurophysiology, Neuropedia Children’s Neuroscience Center

Associate Professor of Pediatric Neurology, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Ms. Amina Maliki
Ms. Amina Maliki

‏‏‎ ‎

Training & Research Manager of Applied & Behavioral Training Institute, Abu Dhabi, UAE

Dr. Ammar Morad
Dr. Ammar Morad

MD, FAAP, FASPHO

Consultant Pediatric Hematology & Oncology, Mediclinic City Hospital, Dubai, UAE

Dr. Anas Abu Hazeem
Dr. Anas Abu Hazeem

‏‏‎ ‎

Consultant Pediatric Cardiology, KidsHeart Medical Center, Abu Dhabi, UAE

Mrs. Areen Abuhejleh
Mrs. Areen Abuhejleh

‏‏‎ ‎

Head of Health Programs, Special Olympics UAE, Abu Dhabi, UAE

Dr. Arif Khan
Dr. Arif Khan

‏‏‎ ‎

CEO & Founder, Neuropedia Children’s Neuroscience Center

Director & Consultant Pediatric Neurologist, Burjeel Hospital

Associate Professor of Pediatric Neurology, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Dr. Ayesha B. Alfalasi
Dr. Ayesha B. Alfalasi

‏‏‎ ‎

Senior Clinical Social Worker.

Founder of Together to Draw a Smile, Dubai, UAE

Prof. Ayman El-Hattab
Prof. Ayman El-Hattab

MD, FAAP, FACMG

Chairman, MENA Organization for Rare Diseases Annual Meeting 2023

Founder & President, MENA Organization for Rare Diseases

Professor, College of Medicine, University of Sharjah

Consultant Clinical Genetics at Mediclinic City Hospital, University Hospital Sharjah, Kanad Hospital, KidsHeart, Neuropedia, and Genesis

Dr. Basel Altrabulsi
Dr. Basel Altrabulsi

MD, FCAP, ABMS

Chief Medical Officer & Head of Pathology Services, National Reference Laboratory (NRL), Abu Dhabi, UAE

Prof. Bassam Ali
Prof. Bassam Ali

‏‏‎ ‎

Professor in Molecular & Genetic Medicine

Leader of the Genetics & Development Research Priority Group, College of Medicine & Health Sciences, Al Ain, UAE

Ms. Chirine Schlink
Ms. Chirine Schlink

‏‏‎ ‎

Senior Speech & Language Therapist, Rashid Centre for People of Determination, Dubai, UAE

Ms. Deepika Gopalarao
Ms. Deepika Gopalarao

‏‏‎ ‎

Rehabilitation Services Coordinator & Head Department of Communication, Language, and Speech, Al Noor Training Centre for Persons with Disabilities, Dubai, UAE

Mrs. Dianne Alameddine
Mrs. Dianne Alameddine

MS, LCGC

Genetic counselor, Igenomix, Dubai, UAE

Prof. Eman Gaad
Prof. Eman Gaad

‏‏‎ ‎

Dean, Faculty of Education, The British University in Dubai, Dubai, UAE

Ms. Emanuela Breglia
Ms. Emanuela Breglia

‏‏‎ ‎

Senior Speech-Language Therapist, Rashid Centre for People of Determination, Dubai, UAE

Mr. Fadi Al Attari
Mr. Fadi Al Attari

‏‏‎ ‎

Life Support Instructor, Dubai Corporation for Ambulance Services, Dubai, UAE

Dr. Fatmah Al-Zahmi
Dr. Fatmah Al-Zahmi

‏‏‎ ‎

Department Head & Consultant, Neurology, Mediclinic Parkview Hospital

Associate Professor, College of Medicine, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Dr. Fida Dyab
Dr. Fida Dyab

‏‏‎ ‎

Supporter for Determined

Head of family support, Read and Enjoy Center, Dubai, UAE

Mr. Fortune Onwuka
Mr. Fortune Onwuka

‏‏‎ ‎

Physiotherapist, Rashid Centre for People of Determination, Dubai, UAE

Dr. Haitham El Bashir
Dr. Haitham El Bashir

MD, MBBS, MRCP, FRCPCH, DCH, CCST, MSc

Consultant Pediatric Neurorehabilitation & Head of Neurosciences Center of Excellence, Al Jalila Children's Hospital

Adjunct Clinical Professor, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Dr. Haitham Talo
Dr. Haitham Talo

MD, FAAP, FACC

Consultant Pediatric Cardiology, Danat Al Emarat hospital & Mediclinic facilities, Abu Dhabi, UAE

Mr. Hassan Badawi
Mr. Hassan Badawi

‏‏‎ ‎

Physiotherapist, Rashid Centre for People of Determination, Dubai, UAE

Prof. Hassib Narchi
Prof. Hassib Narchi

‏‏‎ ‎

Professor, Department of Paediatrics, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain City, UAE

Dr. Hiba Shendi
Dr. Hiba Shendi

MBBS, MD, MRCPCH, MSC, FRCPath, CCT

Allergy & Immunology Consultant, Tawam Hospital, Al Ain, UAE

Prof. Humaid Al-Shamsi
Prof. Humaid Al-Shamsi

‏‏‎ ‎

Consultant Medical Oncology & Director of Oncology Services, Burjeel Medical City, Abu Dhabi, UAE

President of Emirates Oncology Society, Dubai, UAE

Professor, College of Medicine, University of Sharjah, Sharjah, UAE

Dr. Hussain Maseeh
Dr. Hussain Maseeh

‏‏‎ ‎

Social Development & Care Expert, Community Development Authority, Dubai, UAE

Dr. Jehan Suleiman
Dr. Jehan Suleiman

MBBS FRACP (Australia) PhD

Consultant Pediatric Neurology, American Center for Psychiatry & Neurology

Associate Professor, United Arab Emirates University, Al Ain, UAE

Dr. Jessica Rios-Habib
Dr. Jessica Rios-Habib

PhD

Consultant Child & Family Psychology, American Wellness Center, Dubai Healthcare City, Dubai, UAE

Ms. Jinu Rachel John
Ms. Jinu Rachel John

‏‏‎ ‎

Special Educator & Master Degree in Biomedical Genetics, Dubai, UAE

Dr. Joanne Sadier
Dr. Joanne Sadier

‏‏‎ ‎

Associate Professor of Genetics & Biomedical Sciences, College of Health Sciences, Abu Dhabi University, Abu Dhabi, UAE

Dr. Khawla Alshehhi
Dr. Khawla Alshehhi

PhD

Philosophy in Education (Special and Inclusive), British University in Dubai, UAE

Vice Chairman for Yes2MyGiving Initiative, UAE

Adjunct Faculty, General Studies, Higher Colleges of Technology, Ras Al Khaimah, UAE

Prof. Laila AbdelWareth
Prof. Laila AbdelWareth

MBBCh, FCAP, FRCPC, EMHCA

Acting Executive Director, National Reference Laboratory (NRL)

Chair of Clinical Pathology, Cleveland Clinic Abu Dhabi (CCAD)

Adjunct Clinical Professor, Department of Pathology, College of Medicine & Health Sciences, Khalifa University, Abu Dhabi, UAE

Dr. Loai Eid
Dr. Loai Eid

‏‏‎ ‎

President, Emirates Pediatric Nephrology Club

Consultant Pediatric Nephrology, Al Jalila Children’s Specialty Hospital & Mediclinic City Hospital

Council Member of Asian Pediatric Nephrology Association

Associate Professor, Dubai Medical College & Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Prof. Mahir Al-Hilali
Prof. Mahir Al-Hilali

MBChB, FRCPath, DM, MBA

Medical Director & Consultant Hematology, Laboratory Services & Mediclinic Precize, Mediclinic Middle East

Professor of Laboratory Medicine, Mohammed Bin Rashid University, Dubai, UAE

Mrs. Mais Kanan
Mrs. Mais Kanan

‏‏‎ ‎

Director, MENA Organization for Rare Diseases, Dubai, UAE

Mum of Rare Disease Child

Mr. Majid Jafar
Mr. Majid Jafar

‏‏‎ ‎

Co-Founder, Loulou Foundation (UK), Sharjah, UAE

Mrs. Manal AlJaouhari
Mrs. Manal AlJaouhari

DDS, MSc DPH, fellow ICOI, PHD candidate

Deputy Director, Thanks For Your Giving Volunteer Group, Sharjah, UAE

Employee, Dubai Government, Dubai, UAE

Ms. Maria Antonela Axinte
Ms. Maria Antonela Axinte

MsC , GC

Genetic Counselor & Head of Education and Counseling Department, MENA Organization for Rare Diseases, Dubai, UAE

Ms. Marie-Thérèse Abi Akel
Ms. Marie-Thérèse Abi Akel

‏‏‎ ‎

Medical Director & Head of Speech and Language Therapy, Rashid Centre for People of Determination, Dubai, UAE

Mrs. Marwa Diaa
Mrs. Marwa Diaa

MSC

Public Policy Analyst & Researcher, Advocate for Inclusion and Education for People of Determination, Dubai, UAE

H.E. Dr. Maryam Matar
H.E. Dr. Maryam Matar

M.D. PhD

Co-Chairperson, MENA Organization for Rare Diseases Annual Meeting 2023

Founder & Chairperson, UAE Genetic Diseases Association, Dubai, UAE

Founder & Chairperson, Sheikh Zayed Research Centre, Dubai, UAE

Ms. Maryam Oafi
Ms. Maryam Oafi

MSC, RCSI

Head of Community Awareness Section, Dubai Corporation for Ambulance Services, Dubai, UAE

Dr. Mohamed Babiker
Dr. Mohamed Babiker

MD, FRCPCH (London), CCT (UK)

Department Head & Consultant, Pediatric Neurology, Al Jalila Children's Speciality Hospital, Dubai, UAE

Prof. Mohamed Miqdady
Prof. Mohamed Miqdady

MD, FAAP

Division Chief & Consultant, Pediatric Gastroenterology, Sheikh Khalifa Medical City

Clinical Professor, Khalifa University, Abu Dhabi, UAE

Dr. Mohamed Sulaiman
Dr. Mohamed Sulaiman

MD, FAAP, FACC

Consultant Pediatric Cardiology & Director, KidsHeart Medical Center, Abu Dhabi, Dubai, Al Ain, UAE

Assistant Professor of Clinical Pediatrics, Columbia University College of Physicians & Surgeons, New York, USA

Mr. Muhammad Dahdouh
Mr. Muhammad Dahdouh

‏‏‎ ‎

Physiotherapist, National Diagnostic & Evaluation Center, Ministry of Community Development, Dubai, UAE

Dr. Mustafa Al Baroudi
Dr. Mustafa Al Baroudi

‏‏‎ ‎

Consultant Pediatric Hematology & Oncology, NMC Royal Hospital, Abu Dhabi, UAE

Dr. Nameer Alsaadawi
Dr. Nameer Alsaadawi

‏‏‎ ‎

Chair of Medicine & Consultant Hematologist, Head of Clinical Services, Abu Dhabi Bone Marrow Transplant Program, Abu Dabi Stem Cell Center, Abu Dhabi, UAE

Mr. Nazim Fawzi
Mr. Nazim Fawzi

‏‏‎ ‎

Disability & Rehabilitation Specialist, Disability Affairs Expert, Ministry of Community Development, Dubai, UAE

Ms. Nida Khan
Ms. Nida Khan

‏‏‎ ‎

Clinical Dietitian, Neuropedia Children’s Neuroscience Center, Dubai, UAE

Ms. Nipa Bhuptani
Ms. Nipa Bhuptani

‏‏‎ ‎

Director of Applied & Behavioral Training Institutes, Abu Dhabi, UAE

Dr. Omar Ismayl
Dr. Omar Ismayl

MD, MSc Pediatrics, FRCPCH, CCST

Division Head & Consultant, Pediatric Neurology, Sheikh Khalifa Medical City, Abu Dhabi, UAE

Prof. Pierre Krystkowiak
Prof. Pierre Krystkowiak

MD, PhD

Scientist & Consultant Neurology, Abu Dhabi Stem Cells Center, Abu Dhabi, UAE

Professor of Neurology, University of Picardie, Amiens, France

Professor of Neurology, Khalifa University, Abu Dhabi, UAE

Dr. Rania Abusamra
Dr. Rania Abusamra

MBChB, FRCPCH, HERMES

Consultant Pediatric Pulmonary, Mediclinic City Hospital

Assistant Professor, College of Medicine, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Dr. Rania Al Dweik
Dr. Rania Al Dweik

‏‏‎ ‎

Assistant Professor of Public Health and Epidemiology, College of Health Sciences, Abu Dhabi University, Abu Dhabi, UAE

Dr. Rasha Abdelrahman
Dr. Rasha Abdelrahman

‏‏‎ ‎

Head of Psychology Department & Assistant Professor, College of Humanities and Sciences, Ajman University, Ajman, UAE

Dr. Rasheed Al Hammadi
Dr. Rasheed Al Hammadi

‏‏‎ ‎

Division Director, Medical Research & Development, Center of Research and Innovation, Abu Dhabi Department of Health, Abu Dhabi, UAE

Mrs. Renate Baur-Richter
Mrs. Renate Baur-Richter

MSc

Program Director, SEDRA Foundation, Abu Dhabi, UAE

Ms. Saira Sayed
Ms. Saira Sayed

‏‏‎ ‎

Director, Opportunities, ImInclusive, UAE

Dr. Shadi Alkhatib
Dr. Shadi Alkhatib

‏‏‎ ‎

Lecturer, Preventive and Restorative Dentistry, College of Dental Medicine, University of Sharjah, Sharjah, UAE

Dr. Sharifa Yateem
Dr. Sharifa Yateem

BCBA, CAS, MSc Psychology

Founder & Clinical Director, Sharifa Yateem Center for Rehabilitation, Abu Dhabi, UAE

Dr. Shiamaa Almashhadani
Dr. Shiamaa Almashhadani

DDS, MSc DPH, fellow ICOI, PHD candidate

Senior Specialist Dental Public Health, Dubai Academic Health Corporation, Dubai, UAE

Expert Member of the National Oral Health Screening Committee and Leader in Oral Health Alliance Across Borders, USA

Ms. Shruthi Suresh
Ms. Shruthi Suresh

‏‏‎ ‎

Senior Speech-Language Therapist, Rashid Centre for People of Determination, Dubai, UAE

Prof. Sunny Philip
Prof. Sunny Philip

‏‏‎ ‎

Consultant Pediatric Neurology, Mediclinic City Hospital, Mediclinic Parkview Hospital, & Mediclinic Welcare Hospital

Adjunct Clinical Professor, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Ms. Tasneem Abu Rouza
Ms. Tasneem Abu Rouza

MEd. BCBA

Special Education Consultant & Board Certified Behavior Analyst, Emirates Autism Society, Abu Dhabi, UAE

Dr. Vidya Narayanan
Dr. Vidya Narayanan

MD, DNB, MRCPCH, CCT, FRCPCH

Consultant Pediatric Endocrinology, Mediclinic Parkview Hospital, Dubai, UAE

Prof. Walid Abuhammour
Prof. Walid Abuhammour

MD, MBA, CIC, FAAP, FIDSA

Department Head & Consultant, Pediatric Infectious Diseases

Acting Director of Academic Affairs

Chairman of Infection Control Program

Chairman of Antimicrobial Stewardship Program, Al Jalila Children’s Specialty Hospital, Dubai, UAE

Dr. Walid Kaplan
Dr. Walid Kaplan

MD

Department Chairman & Consultant, Pediatric Endocrinology, Tawam Hospital, Al Ain, UAE

Dr. Zainab A. Malik
Dr. Zainab A. Malik

MD, MSC, FAAP

Consultant Pediatric Infectious Diseases, Mediclinic City Hospital

Associate Professor of Pediatrics, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Chat with a representative

Address: MENA Organization for Rare Diseases FZ-LLC, SD2-137, 2nd floor, Dubai Science Park, Dubai, United Arab Emirates

Phone Number: +971 50 922 5332

Email Address: contact@menararediseases.com

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