MENA Congress for Rare Diseases
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INTERNATIONAL SPEAKERS

Alphabetically ordered

Dr. Abdullah Al Zayed

Dr. Abdullah Al Zayed

Consultant Internist and Hematologist

Qatif Health Network, Qatif, Saudi Arabia

SA
Ms. Alexandra Heumber Perry

Ms. Alexandra Heumber Perry

Chief Executive Officer, Rare Diseases International, Geneva, Switzerland

CH
Prof. Ali Taher

Prof. Ali Taher

Associate VP for Academic Centers, Development, and External Affairs, Director for Naef K. Basile Cancer Institute, Professor of Internal Medicine - Hematology Oncology, and Founding Director of Fellowship and Residents Research Program, Faculty of Medicine, American University of Beirut, Beirut, Lebanon

LB
Mrs. Amelia Beatty

Mrs. Amelia Beatty

Board of Directors, Foundation for Angelman Syndrome Therapeutics (FAST), Austin, Texas, USA

US
Dr. Anwar Baban

Dr. Anwar Baban

Consultant Clinical Genetics and Genomics, Rare Diseases and Medical Genetics Units, Bambino Gesu Children's Hospital & Research Institute, Rome, Italy

IT
Dr. Arturo Saavedra

Dr. Arturo Saavedra

Dean of Virginia Commonwealth University School of Medicine and Executive Vice President for Medical Affairs, Virginia Commonwealth University, Richmond, Virginia, USA

US
Mrs. Asmaa Al-Ismailia

Mrs. Asmaa Al-Ismailia

Head of the Family Support Group for Rare Diseases in Sultanate of Oman, Muscat, Oman

OM
Dr. Bahaa Jalal

Dr. Bahaa Jalal

Director, Center for the Disabled, Assiut University, Assiut, Egypt

Director, Help Center for the Middle East and North Africa, Kuwait, Kuwait

KW
Prof. Brahim Tabarki Melaiki

Prof. Brahim Tabarki Melaiki

Consultant Pediatric Neurology, Prince Sultan Military Medical City, Riyadh, Saudi Arabia

Adjunct Professor Pediatric Neurology, AlFaisal University, Riyadh, Saudi Arabia

SA
Mr. Cagdas Canbolat

Mr. Cagdas Canbolat

Patient Advocate at Galactosialidosis Network and Board Member of International Society of Mannosidosis & Related Diseases, (ISMRD), London, UK

GB
Dr. Cristina Skrypnyk

Dr. Cristina Skrypnyk

Consultant Medical Geneticist, Genetics & Inherited Disorders, Al Jawhara Center for Molecular Medicine, Assistant Professor of Molecular Medicine, Arabian Gulf University & University Medical Clinics,

Chair, Rare Disease Campaign & Care for Rare Support Group, Manama, Kingdom of Bahrain

BH
Mrs. Duaa AbuRizik

Mrs. Duaa AbuRizik

CEO of Life and Health Insurance in Gulf Insurance Group and Foster Mother of Child with Developmental Delay and a Genetic Mutation in PRRT2 Gene, Kuwait

KW
Mrs. Ellen Koekoeckx

Mrs. Ellen Koekoeckx

Global Advisor, Foundation for Angelman Syndrome Therapeutics (FAST), Leuven, Belgium

BE
Dr. Ellie Carrell

Dr. Ellie Carrell

Assistant Professor, Center for Inherited Myology Research, Virginia Commonwealth University, Richmond, Virginia, USA

US
Ms. Hadeel Iraq

Ms. Hadeel Iraq

Nutrition and Obesity Care Specialist, Family and Weight Management Clinic, Mavis Medix Clinic, Mississauga, Ontario, Canada

CA
Mrs. Hanaa El-Sadat

Mrs. Hanaa El-Sadat

Chairwoman of Yasmin Elsamra Foundation, DEBRA Egypt, and Member of the Executive Board Committee of DEBRA International, Cairo, Egypt

EG
Prof. Hatoon Ezzat

Prof. Hatoon Ezzat

Advisor to the Vice Minister and the Director of Blood Disorder Administration, Saudi Minstry of Health, Riyadh, Saudi Arabia

Professor of Hematology and BMT, University of British Columbia, Canada and University of Dar Al Uloom, Saudi Arabia

SA
Dr. Hind Alsharhan

Dr. Hind Alsharhan

Assistant Professor, Medical and Biochemical Geneticist, Department of Pediatrics, Faculty of Medicine, Kuwait University, Kuwait City, Kuwait

KW
Dr. Karolina Podolska

Dr. Karolina Podolska

Internal Physician, Accredited Duchenne Centers Program Manager, and Coordinator of Center for Adults with DMD, General University Hospital in Prague, Prague, Czech Republic

CZ
Ms. Khalsa Al-Kharusi

Ms. Khalsa Al-Kharusi

Genetic counsellor, Genetics and Developmental Medicine Clinic, Sultan Qaboos University Hospital, Muscat, Oman

OM
Prof. Maha Zaki

Prof. Maha Zaki

Professor, Clinical Genetics Department,

Human Genetics & Genome Research Institute, National Research Centre

Professor, Genetics Department, Armed Forces College of Medicine, Cairo, Egypt

EG
Mr. Majid Jafar

Mr. Majid Jafar

Co-Founder, Loulou Foundation, London, UK

GB
Dr. Maryem Ismail

Dr. Maryem Ismail

Consultant Pediatric Metabolic and Genetics, Misurata Medical Center

Associated Professor, Misurata University, Misurata, Libya

LY
Dr. Michael Kiefer

Dr. Michael Kiefer

Assistant Professor of Physical Therapy and Investigator in the Center for Inherited Myology Research, Virginia Commonwealth University, Richmond, Virginia, USA

US
Prof. Mohamed Yassin

Prof. Mohamed Yassin

Head of Hematology Department, Senior Consultant Hematology and BMT, and Program Director of Hematology Fellowship Program, Hamad Medical Corporation

Professor of Hematology, College of Medicine, Qatar University, Doha, Qatar

QA
Prof. Nicholas Johnson

Prof. Nicholas Johnson

Director of the Center for Inherited Myology Research (CIMR), Professor, and Vice Chair of Research in Neurology, Virginia Commonwealth University, Richmond, Virginia, USA

US
Ms. Nicoletta Madia

Ms. Nicoletta Madia

Community Manager, World Duchenne Organization, Amsterdam, The Netherlands

NL
Prof. Osama Aldirbashi

Prof. Osama Aldirbashi

Senior Consultant Clinical Scientist, Department of Laboratory Medicine and Pathology, Hamad Medical Corporation

Clinical Professor, College of Health Sciences, Qatar University

Professor Adjunct, College of Health & Life Sciences, Hamad Bin Khalifa University, Doha, Qatar

QA
Dr. Pascale Karam

Dr. Pascale Karam

Associate Professor of Clinical Pediatrics and Inborn Errors of Metabolism, Department of Biochemistry and Molecular Genetics; and Head of Inborn Errors of Metabolism Program, Department of Pediatrics and Adolescent Medicine, American University of Beirut Medical Center, Beirut, Lebanon

LB
Dr. Rasha El-Sherif

Dr. Rasha El-Sherif

Assistant professor of Neurology, Newgiza University, Chair of Myo-Care Foundation, and Director of Neuromuscular Registry, Cairo, Egypt

EG
Dr. Reem Al-Sulaiman

Dr. Reem Al-Sulaiman

Acting Chairman of Medical Genetics Department, Sr. Consultant Genetic Counseling (ABGC Board), Lead of Genetic Counseling Directory, Assistant Chair of Rare Disease and Research Committee, and Vice President of Qatar Network of Medical Genetics, Hamad Medical Corporation, Doha, Qatar

QA
Dr. Rola Ba-Abbad

Dr. Rola Ba-Abbad

Senior Consultant Ophthalmologist, Ocular Genetics, Electrophysiology of Vision & Medical Retina, King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia

SA
Mrs. Safaa Abu Shabab

Mrs. Safaa Abu Shabab

Computer Information Technology Engineer and Mother of Child with Congenital Insensitivity to Pain with Anhidrosis (CIPA), Istanbul, Turkey

TR
Prof. Salam Alkindi

Prof. Salam Alkindi

Professor, Department of Hematology, Sultan Qaboos University, Muscat, Oman

OM
Dr. Samuel Carrell

Dr. Samuel Carrell

Assistant Professor of Neurology and the Associate Director of the Center for Inherited Muscle Research (CIMR), Virginia Commonwealth University, Richmond, Virginia, USA

US
Mr. Svein Olaf Olsen

Mr. Svein Olaf Olsen

President of the International Huntington Association, Søgne, Norway

Founder and Owner of Anzyz Technologies AS, Kristiansand, Norway

NO
Prof. Tawfeg Ben-Omran

Prof. Tawfeg Ben-Omran

Division Chief, Genetic & Genomic Medicine, Sidra Medicine

Senior Consultant, Medical Genetic Department, Hamad Medical Corporation

Professor, Weill Cornell Medical College, Doha, Qatar

QA
Prof. Uğur Özbek

Prof. Uğur Özbek

Chair, RAREBOOST Project

Director, Rare and Undiagnosed Disease Platform

Orphanet Country Coordinator, Izmir BioMedicine and Genome Center, Izmir, Turkey

TR
Dr. Zahra Alsahlawi

Dr. Zahra Alsahlawi

Consultant Pediatric Inborn Errors of Metabolism and Clinical Genetics and Deputy Chief of Medical Staff, Salmaniya Medical Complex, Ministry of Health

Assistant Professor, Pediatric Department, Arabian Gulf University, Manama, Bahrain

BH
Prof. Zuhair Al-Hassnan

Prof. Zuhair Al-Hassnan

Consultant, Department of Medical Genomics, Centre for Genomic Medicine, King Faisal Specialist Hospital and Research Center

Professor of Genetics, College of Medicine, Alfaisal University, Riyadh, Saudi Arabia

SA
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